Speaking for the Dead

My brother Michael died on July 4, 2003. It was five days after his 26th birthday. He died of pneumonia and heart failure caused by the weakening of his heart by Duchenne Muscular Dystrophy. The same disease I have. Our Perfect Enemy.

We didn't always get along because there was only two years between us. I must admit that being the older one did have its privileges. Primarily picking on the younger one is the biggest privilege. I really, really pushed that privilege. Mike had cognitive delay issues as well as a plethora of learning disabilities. His temper was thermonuclear, but it was easy to find his "big red button" and push it. I caused quite a few meltdowns. His brown eyes turned darker brown, his Italian complexion shaded red, his voice became tight and he stuttered. The relationship we had in our youth was natural, but like all things in nature our relationship evolved. When we entered our twenties, we fought no more. We realized that we were the only brothers we had. From there, he became my best friend. I could tell him anything and he could count on me to listen to anything. I had a treasure and I knew it.

I don't remember when the conversation with God happened. After high school graduation I'm sure. I had it all figured out and I was laying out the plan. When I used to speak to God, I didn't bow my head with eyes closed. I always looked up and spoke aloud in a quiet place locked away from the world. The plan was simple: I would die first, then Grandma who was our caregiver and Mike would go last. It was fair, straight and statistically likely. It was my only askance.

Michael went to the hospital in June 2003, one year after having an episode of pneumonia that hospitalized him. He recovered then. I knew he would. I knew. In 2003, I knew he would fight and win again. In 2003, I was wrong. He was gone and ooooooooooooohhhhhh God there was pain. Now, hollowness. Then, rending pain. I WAS SUPPOSED TO GO FIRST. ME. Not him. Me. I was older, weaker and sick more often. Didn't matter. None of it mattered. He was GONE. Taken. Taken from me.

I understand survivor's guilt. I understand it wasn't my fault. Yet I still feel betrayed, cheated and even rage sometimes. He should be writing here and I should be in the next place. It is only fair, but life's not fair. So I live. I move along. There is a caveat, however. A vow I made to myself, the universe and Whoever is listening. I live FOR him. I will speak FOR him. He always trusted me without question. He believed in me, believed in goodness, believed in justice. So, as debt to him, I will live to try to create the world he wanted. When I speak of compassion, empathy or what is right, I speak for him and the power of his spirit. I will speak for the dead because they can't speak for themselves. I speak for him. I am proud to do so.

What's the point?

What's the point? Is this pointless? Are we getting to the point? And my point is...?

Well, my point is points. Why are we so compulsively obsessed with "the point"? Why does everything need a point? Why can't we just be? Sometimes we chase points like race dogs chase the mechanical wabbit. What if the presumed point isn't actually attainable? What if you can't know that until you get there?

Points aren't ends in themselves. They are guideposts along the way. Does lack of a sign make the trip not worth taking? I say no. It's perfectly fine to enjoy the scenery even if you are lost or technically between points. As a matter of fact, I believe that the most important time we spend is without a point. It's when we enjoy existence the most. It's when we can truly discover who the little green person that runs the control room in our brain is. It's when the Truth can be realized. So much important stuff can happen without "the point."

Okay. In summa, quit obsessing over points and start living for Rasputin's sake. Do you get the point? Good. I don't either. Ta ta.

D